Baby Arthur to get world's most costly medicine @BBC News live 🔴 BBC


  • Label: Random
  • Category: Entertainment
  • Creator: BBC
  • Picked at:  June 1, 2021 at 12:53PM
  • Youtube:https://youtu.be/YxUbKVsFiig


Subscribe and 🔔 to OFFICIAL BBC YouTube 👉 https://bit.ly/2IXqEIn Stream original BBC programmes FIRST on BBC iPlayer 👉 https://bbc.in/2J18jYJ 🔘 Subscribe and 🔔 @BBC News 👉 https://bit.ly/3a1zyip 🔘 Stream BBC News live on BBC iPlayer 🔴 https://bbc.in/3b64IVP 🔘 Coronavirus / Covid-19 👉 https://bbc.in/3luQp33 🔘 Follow BBC News live updates here 👉 https://bbc.in/2JmUswL Top stories this morning 0:00 Baby Arthur is just five months old. He has no way of knowing the treatment he is receiving in his right arm is the world's most costly medicine. His devastating progressive disorder causes loss of muscle control. But he has become one of the first patients to be treated on the NHS with Zolgensma, a gene therapy with a list price of £1.795m. Around 40 children are born with the most severe form of Spinal Muscular Atrophy (SMA) every year. Untreated, they rarely live beyond two. The NHS has negotiated a confidential discount which means dozens of infants can be treated each year with Zolgensma, which is manufactured by Novartis Gene Therapies. Arthur, from south-east London, finds it difficult to move his arms and legs and cannot lift his head, so some permanent damage has already been done. The hope is the one-off treatment will stabilise his condition and prevent further deterioration. Get the full story 👉 https://bbc.in/3yTSHzu Get the latest news, sport, business and weather from the BBC's Breakfast team live on iPlayer daily from 6am. BBC Breakfast | BBC News | BBC #BBC #BBCiPlayer #BBCNews #BBCNewsLive #BBCCoronavirus #Coronavirus #Covid-19 #CoronavirusOutbreak #Corona #CoronavirusUK All our TV channels and S4C are available to watch live through BBC iPlayer, although some programmes may not be available to stream online due to rights. If you would like to read more on what types of programmes are available to watch live, check the 'Are all programmes that are broadcast available on BBC iPlayer?' FAQ 👉 https://bbc.in/2m8ks6v.

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